58% never used dental floss and 42% used it occasionally
100% felt oral health education would benefit them.
44 (33%) psychologically distressed with a GHQ score of ³
114 (85%) had unmet information needs.
Content: postoperative self-care; symptom management;
clarifying the illness experience; psychological responses; preparing
patients and families to coordinate follow-up care.
Greater information needs related to higher levels of anxiety,
more depression, and more psychological complaints.
Overall risk recall rate for both procedures was 39%.
The recall rate of the intervention group was 50%
compared with 30% in control group.
Majority strongly agreed pathway was easy to read,
understand, helped increased patient understanding of surgery and post-operative
care, helped improve self-care, and decreased anxiety.
79% reported booklet was clear.
Majority reported booklet included enough detail.
83% felt terminology was suitable.
Significant increase in satisfaction with information
about radiotherapy simulation procedure, preparation for the procedures,
reaction to treatment, appointment times, post radiotherapy treatment
expectations, and overall satisfaction.
Significant improvements in physical and social performance
and global QOL, reduced fatigue, sleep disturbance, and depressive symptoms.
No significant differences in psychological distress,
knowledge about radiation therapy, self-efficacy about coping with treatment
and physical symptoms.
High levels of satisfaction with the video and all
reported that they would recommend the video to other patients.
Well informed about the surgical procedure and unprepared
for the long-term lifestyle changes.
Post-operative information, support and advice
Positive changes in brushing, flossing behaviour, and
mouthwash use with educational tool (77%, 46% and 67% vs. 64%, 50% and 68,
Most patients experienced fear, anxiety, and pain.
Patients who had difficulties in speaking, swallowing, and breathing as well
as changes in appearance said they did not receive information regarding
All patients used the monitoring (early detection of
patient problems) function and rated ‘monitoring’ with a mean score of 8.0 on
a 10-point scale.
The least used and appreciated function was ‘contact with
Higher levels of satisfaction were associated with fewer
symptoms, stronger beliefs in personal control of the illness and greater
understanding of the illness.
Low levels of satisfaction with the amount and content of
information pretreatment were related to lower levels of global quality of
life and higher levels of depression after treatment.
Patients were generally satisfied with information,
however key areas of improvement were identified, such as the delivery of
information about support groups, where to go for financial advice and the
long-term effects of treatment on ability to work, physical functioning and QoL.
86.5/100 mean score of satisfaction with online patient
Stress, fatigue, side effects of chemotherapy, and
preoccupation with surgery all reduced patients ability to understand and
remember the health information they had received in the hospital or the
Patients preferred verbal information, to trust in health
professionals as their primary source of information, and to be cautious and
selective about what they want to know about their illness.
Most information needs were adequately addressed during
Desired ongoing access to information about: lifestyle
factors that might affect risk of recurrence, signs and symptoms of
recurrence, and recent developments in thyroid cancer diagnostics and
Strong preference for access to information through
convenient resources, e.g. internet (93%).
Information needs at diagnosis were predicted by previous
serious illness experiences, prior alcohol use, anxiety level, education
level, time since diagnosis, psychological impact, and religion.
Information needs post-operatively were predicted by
previous serious illness experiences, prior alcohol use, anxiety level,
psychological impact, educational level, and marital status.
84% patient and 96% relative respondents were satisfied
or very satisfied with information on illness, treatment options, practical
issues, explanation of side-effects and lifestyles advice.
Verbal information was much more highly valued than
written. Respondents’ wanted tailored information specific to their case.
Significantly lower levels of anxiety and depression at 3
and 6 months.
Patients need information concerning: illness, treatment,
side-effects, physical fitness, impact on functioning, recovery time, and
impact on quality of life.
Thyroid cancer survivors indicated they received no or a
little information about different aspects of their disease (27-86%), medical
tests (20-27%), treatment (21-90%), and aftercare (86-91%).
34% wanted to receive more information (defined as unmet